Dr. Effy Vayena,
BmEL PhD Scientific Coordinator
Tel.: 044 634 83 80
Effy Vayena is a senior fellow at the Institute of Biomedical Ethics, University of Zurich and the academic coordinator of the PhD program in Biomedical Ethics and Law/medical track. Before joining the IBME she worked for the World Health Organization in Geneva where she was involved with the Organization’s activities on infertility, assisted reproduction and research ethics. She has served as a member of the WHO's Research Ethics Review committee and she continues consulting for the Organization. She has published on the ethics of health research, on issues surrounding assisted reproductive technologies, biobanks, pediatric research and genomics. Her research focus is currently on ethical and policy issues that arise in the areas of genomics, personalized medicine and the novel uses of online health data for research.
Vayena E, Tasioulas J (2013) Adapting Standards: Ethical Oversight of Participant-Led Health Research. PLoS Med 10(3): e1001402. Link
Prainsack B, Vayena E. Beyond the clinic (BTC): ‘Direct-to-consumer’ genomic profiling services and pharmacogenomics. Pharmacogenomics 2013 14(4):403-412.
Vayena E, Mastroianni A, Kahn J. Caught in the web: informed consent in online health research. Science Translational Medicine 5, 173cm2 (2013).
Vayena E. Direct-to-consumer genomics on the scales of autonomy. J Med Ethics. 2014 May 5. doi: 10.1136/medethics-2014-102026.