Ethik-Zentrum – Institut für Biomedizinische Ethik

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Curriculum Vitae

Effy Vayena is a senior fellow at the Institute of Biomedical Ethics, University of Zurich and the academic coordinator of the PhD program in Biomedical Ethics and Law/medical track. Before joining the IBME she worked for the World Health Organization in Geneva where she was involved with the Organization’s activities on infertility, assisted reproduction and research ethics. She has served as a member of the WHO's Research Ethics Review committee and she continues consulting for the Organization. She has published on the ethics of health research, on issues surrounding assisted reproductive technologies, biobanks, pediatric research and genomics. Her research focus is currently on ethical and policy issues that arise in the areas of genomics, personalized medicine and the novel uses of online health data for research.

Recent Publications

Vayena E, Tasioulas J (2013) Adapting Standards: Ethical Oversight of Participant-Led Health Research. PLoS Med 10(3): e1001402. Link

Prainsack B, Vayena E. Beyond the clinic (BTC): ‘Direct-to-consumer’ genomic profiling services and pharmacogenomics. Pharmacogenomics 2013 14(4):403-412.

Vayena E, Mastroianni A, Kahn J. Caught in the web: informed consent in online health research. Science Translational Medicine 5, 173cm2 (2013).

Vayena E. Prainsack B. The challenge of personal genomics in Germany. Nature Biotechnology. 2013; 31: 16-17 Link

Vayena E, Mastroianni A, Kahn J, Health research with novel uses of online data. American Journal of Public Health, 2012 Oct 18.

Additional publications in google scholar profile

Forschungsprojekte

Personal genomics and personalised medicine

Ethical issues in big data uses for health research

Redefining Families: Bioethics, Assisted Reproduction and Emerging Family Forms. (collaborative project with the Center for Family Research, University of Cambridge, UK)